What to expect
participating in a clinical trial
If you're considering a clinical trial, the websites listed below are a great starting point as you start to make informed decisions about your health. Participation in any clinical trial is entirely voluntary. That means you can leave a study at any time and for any reason, without penalty.
The ABCD: After Breast Cancer Diagnosis Signature Service, One-to-One Mentoring, custom matches breast cancer patients, their family, and friends with professionally trained and supported breast cancer survivors and co-survivors. Mentor matches are personalized based on similar diagnosis, treatment plans, and life circumstances/values. Match Mentors are available any time from diagnosis through treatment and beyond. All matches begin with a phone call and all services are FREE.
This website offers unscripted interviews with people who have participated in clinical trials, and addresses common concerns many people experience when considering a clinical trial.
You can find information here about different phases of clinical trials, where to find a clinical trial, and common questions about what is involved in participating. You will also be able to find a lot of information about how people and their privacy are protected during a clinical trial.
This site is the NIH's search engine for clinical trials. You can search for a clinical trial by typing in your diagnosis and other optional information. The section of this site for learning about clinical studies has plenty of information about clinical trials and different aspects of participating in them.
The NIH has an entire section of their website devoted to giving people information about clinical trials. Everything from educational materials to videos to how to find a clinical trial can be found on this site. They even have a Spanish version of this site (videos too!)
Of course, many other websites and organizations have valuable information about clinical trials for specific cancers. These are just a few of the many resources available to help you begin the decision-making process.
This page was updated in January 2019