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What to expect

participating in a clinical trial

If you're considering a clinical trial, the websites listed below are a great starting point as you start to make informed decisions about your health. Participation in any clinical trial is voluntary. That means you can leave a study at any time and for any reason, without penalty. 

WHAT TO EXPECT: Welcome

​​​ABCD Mentoring Program

The ABCD: After Breast Cancer Diagnosis Signature Service, One-to-One Mentoring, custom matches breast cancer patients, their family, and friends with professionally trained and supported breast cancer survivors and co-survivors. Mentor matches are personalized based on similar diagnosis, treatment plans, and life circumstances/values.  Match Mentors are available any time from diagnosis through treatment and beyond. All matches begin with a phone call and all services are FREE.

ACT (About Clinical Trials)

This website offers unscripted interviews with people who have participated in clinical trials, and addresses common concerns many people experience when considering a clinical trial.

American Cancer Society

You can find information here about different phases of clinical trials, where to find a clinical trial, and common questions about what is involved in participating. You will also be able to find a lot of information about how people and their privacy are protected during a clinical trial. 

ClinicalTrials.gov

This site is the NIH's search engine for clinical trials. You can search for a clinical trial by typing in your diagnosis and other optional information. The section of this site for learning about clinical studies has plenty of information about clinical trials and different aspects of participating in them.

Division of Cancer Prevention

The National Cancer Institute's Division of Cancer Prevention (DCP) provides information on clinical trials for cancer prevention, early detection, and supportive care. This website allows the user to search for ongoing clinical trials and includes a section devoted to information about landmark clinical trials in cancer prevention.

Illinois Department of Public Health

The Illinois Department of Public Health's website gives a brief summary of clinical trials and why one would want to participate in this kind of research. This site includes additional links to useful information at the National level.

National Institutes of Health

The NIH has an entire section of their website devoted to giving people information about clinical trials. Everything from educational materials to videos to how to find a clinical trial can be found on this site. They even have a Spanish version of this site (videos too!) 

Robert H. Lurie Comprehensive Cancer Center of Northwestern University

The Lurie Cancer Center is home to physicians and scientists who combine scientific discovery with medical expertise to research better ways to prevent, diagnose and treat cancer.

Resources
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